Guided by Moonlight

We cannot know how suffering works just by thinking about it. At some point, it will show up in our life as an experience. When it does, we must meet it, in one way or another. This is an account of one instance in which I personally faced suffering: what it taught me, how it moved me, and how it has shaped my understanding of being human today.

This post is Part 2 in a three-part series exploring the topic of suffering: if you haven’t yet, I recommend reading Part 1, Encountering Suffering, before going further.

This sharing is not intended to be a recommendation or prescription for how someone else should relate to suffering. It is simply my own experience, offered as a perspective and example of how suffering has moved through the life of one person. It also contains intense subject matter: including discussing suicide** and the grief around it. I invite you to consider your personal willingness to engage such content, and to go gently if you choose to do so.

**I have a strong dislike for this word-to me, it feels very medical, impersonal, and removed from the life of an actual person. This is the only time I’ll be using this term in writing, and will attempt to describe it going forward in other ways.


Dedicated in loving memory of my brother, Fischer.


My younger brother Fischer died when I was 18 years old, on January 13th, 2016. This entry is about losing him and my journey through the suffering that came from that loss. With that said, I want to start by sharing some things that I remember fondly about him. When we lose someone, we tend to associate their death with the whole of who they are. In reality, they’re so much more than that. Losing Fischer was perhaps my most significant experience with him, but only a fraction of the life we shared together. It would be incomplete to associate him only with pain and loss-and in the spirit of recognizing him properly, I’d like to recall some things about him that make me happy.

Fischer was someone who lived life with an intensity that I’ve rarely seen in others. Whatever he did, he did it completely. He was a fierce competitor, both in sports and with his older brother. He loved his friends with everything he had, and had more than I could count or probably even know. He cared deeply for others, and was protective of those he felt were being harmed or mistreated. He threw the best parties I’ve ever been a part of: he loved celebrations and could make any holiday feel like the greatest day of the year. He had the best laugh: loud, uncontrollable, without a trace of self-consciousness. He was adventurous, often a daredevil, free-climbing cliffs that were definitely not safe and attempting flips off our garage. He had a brilliant spirit: he loved what he loved with such passion you couldn’t help but be swept along by it. He was creative and spontaneous, filling our house with art projects and organizing games for us to play with the neighborhood kids. He was loyal, stubborn, a rascal, uncompromising but willing to love you to the ends of the earth. More than anything, he was, and always tried to be, completely himself.

Fischer was also transgender, and I think it was this part of his identity that allowed him to access life in a way that was so much broader and dynamic than most people that I knew. I am beyond proud of him for naming who he was, and the courage it required to do so in a world that continues to fail transgender people. Fischer died shortly after coming out to our family, during the winter break of my first semester as a new college student. What follows is a journey through my grief, in the form of vignettes.


Night

I am driving to the hospital to meet my family, panicking, desperately trying to calm down. I had been skiing with friends when I received a call from my mother: Fischer had attempted to take his life, he was alive but badly injured. The fear in me is raw, wild; it knows that I have no control. I can barely focus on the road, my mind is going everywhere. I am trying to stay with the fact that Fischer is alive, but it offers no comfort. I cannot help but imagine the worst, and the terror of that thought makes my body go cold. I want to leave, eject myself into space, I want to go back in time, anywhere but forward, anywhere but now. I cannot face this, I cannot do this.


I am in Fischer’s hospital room with my parents and the medical team caring for him. He’s been unconscious since he was admitted three days ago. The doctor is telling us that they have tried everything, but are unable to reverse the extent of his injuries. We are going to lose him. Something inside me shatters and is gone, never to be seen again. I feel claustrophobic, there are too many people in the room. I turn away so no one can see me, tears streaming down my face. The view outside the hospital room overlooks a river, you can see streams of cars going by on the highway, people taking walks, birds floating on the wind. Life. I am amazed to see a world go on as mine is ending.


I am in the hospital parking lot walking to my car. It is dusk. I have just said goodbye to Fischer for the last time and posted an announcement on my social media page. My phone is buzzing, pinging like crazy in my pocket. I barely notice it. The sky is purple, the edges of evening softly pressing up from the horizon. Suddenly, something stops me in my tracks. I pause, looking up into the sky as day becomes night. It is impossibly beautiful. It feels wrong to be comforted, to see anything that could suggest beauty. Inside I feel ugly, mangled, destroyed.

I hear the sounds of the city, the sound of people going home for the day, or on their way to meet friends, or to pick up their mail, to cook dinner, to celebrate their birthday, to get a good night’s sleep before a vacation. I can hear all the possibilities, the choices, the coming and going of Everything, it is a rush that becomes a roar in my ears. All this, and somehow me too. I think to myself, “This can happen to anyone.”


I am awake, the first morning after saying goodbye to Fischer. First, nothing, and then remembering. The agony and devastation of recalling what’s happened is unbearable. My skin crawls, I feel sick. I open my phone and post a message on my page: “Today is precious. Let us be kind to one another and look at each other with eyes of compassion.” I don’t know what moves me to write this. I want the earth to open up and swallow me whole.


I am at the church where we are having Fischer’s funeral service, standing at the pulpit and about to give his eulogy. There are so many people there that the chapel can’t fill them all: they’re standing in the doorway and filling the balcony. I am shaken by how many of his friends are here, friends whom I had never met or even knew of before today. It overwhelms me to see how loved he was.


I am at my parents’ house, which feels both like an island of safety and a violation of a sacred space. The spring semester is coming up next week, and I have an impossible choice to make: to go back to school and resume my life at college, or to stay at home and take time away. My parents tell me they support whatever I think is best for me. I don’t know what that is. I feel like I’m dying inside, something has been leaving me like water being poured slowly out of a vase. I am losing an experience of myself that I’ll never get back.


I am sitting in meditation in my dorm room, and my muscles feel like concrete. There is a storm of grief inside of me, a tempest, lightning, darkness. I am scared, but I’m trying not to run away. I listen quietly, as waves of anger and anguish pound against the inside of my body. There are moments where I want to stop, there are moments where I feel so sad I want to throw up, but I stay. Waves, battering me, threatening to overwhelm in their power. And then I hear it: a silence below it all, the depths of an inner ocean untouched by the storm on the surface. There is a stillness there that I have never encountered before.


I am driving home from class, a year has gone by. It is late. As I drive up a residential street, something seizes me in my chest, and I have to swerve over to the side of the road to avoid hitting something. I feel like someone has thumped me in the ribs with a sledgehammer, and I am crying, and I am crying, and I am crying. I miss Fischer with everything in me. I so badly don’t want my life to be this way, I don’t know what to do. I continue until it’s completely out of me, until the heaving stops and I can find my breathing again. I put my car in drive, pull back onto the street, and continue home.


I’m sitting next to a companion I’ve just met, who will later become a dear friend. Two years have gone by. I am on an island in the middle of the ocean-the world around me is alive with the chatter of life. We are talking, about everything and nothing. As the sun sinks behind the mountains and the sounds of life grow louder, he says, “I think one of the greatest mistakes humans ever made, was forgetting that they belong to each other.” Something comes alive in me that has not been there before: the flash of something fresh, a feeling. For the first time since Fischer died, I think of him and do not feel sad.


I am in front of my computer, preparing to share my story in a way I never have before. Eight years have gone by. I have always wanted to do this, but I’m tired, and scared. I’m thinking about all the times I’ve tried to share this, all the times I’ve watched people draw away from me with fear and pity in their eyes. They would pull away, and all the old feelings would come up again: the hurt, the anger, the loneliness. I’m thinking about the cage of that silence, imposed by others and imposed by myself. I think about how, maybe, that has kept Fischer in a cage too. I take a deep breath, and begin to write.


Moonlight

A journey through grief, with suffering, is life-long. We can pretend, or run, or deny all we want, but it will continue to ask for our attention. To give our presence to suffering takes courage, but it is in that courage that we find our humanity. We stop pretending, giving up the facade of trying to have a perfect life, and participate in something sacred. Facing suffering shows us something real about who we are.

I’ve offered a few moments from my experience of grieving my brother’s death to express the range of how this happens: it is not a linear process, it is often complex. Some things repeat themselves, lessons we have to go through to recognize more of ourselves. We may encounter the unbearable, looking at what can feel impossible to gaze upon. We will be made different: but what that difference looks like is up to us.

I often think about the moment when I decided to go back to school, just two weeks after Fischer died. When I returned, totally unprepared and surrounded by people fresh off beach vacations or a few weeks in Europe, I essentially had two options. One would be to ignore my pain, to shut it up and drown in avoiding it. There was plenty of excess on tap in college for me to do that: I was only one semester in and had nothing to lose. I could choose oblivion, and there would have been no one to stop me.

The other choice was seemingly impossible, with no guarantees: not to run away, to face my suffering head-on. To sit with it, to learn from it, to know it as if I were getting to know someone else. I could learn from what suffering had to say, rather than live in fear of what it was. I didn’t know it at the time, but choosing this was a decision that probably saved my life.

Facing my suffering meant, in some ways, accepting my own death. There was a Me who died the day Fischer died, the someone who had shared 16 years of life with him. I had to grieve that as much as grieving Fischer himself. Perhaps, it was grieving the loss of innocence, of the naive belief that I could move through the world always on my own terms. That I could always be in control, that things would not break, that I could shape the world around me so that nothing unexpected would happen. I had to grieve that life that I had imagined with Fischer, the life that was now gone.

In learning acceptance, I felt a lot of fear around getting closer to my own suffering. There was no manual for this, and I didn’t know what would happen. Suffering and grief can make for odd companions. The world tells us that they’re life’s outcasts, which can make you feel alone too. Everyone seems so much happier avoiding these things, don’t they? We make a compelling case for ignorance, for pretending that we’re fine and that the world can’t hurt us. Choosing not to pretend, to get closer to my own pain, was terrifying. I didn’t know what I was doing-but I knew that there was something important to learn by not running away. Something was moving in me, and I needed to listen.

This was not easy-in fact, it was probably the hardest thing I’ve ever done in my life. It was painful, heartbreaking, intensely lonely at times. It was so tempting to avoid my suffering: to lose myself in partying, in numbing myself, in whatever distractions happened to be around at that time. It is incredible to stand upon the edge of your own life, to see the possibility of giving in and know how easy it would be to do so. There were days where that choice felt closer than my own breath. To choose the harder thing every day, to not give in, was excruciating. Yet even if I wasn’t fully aware at the time, there was a part of me that sensed there was some kind of life that included my suffering. There was a life through and beyond this: somewhere, somehow.

Trying to discover what this was meant that I began to pour myself into my classes and meditation. I began to study suffering itself. Each morning I would sit with my grief, learning its sensations and textures. In the afternoons, I would study my experience through my psychology courses: learning about trauma, depression, resilience, the ins and outs of the human mind. I began to make a map for myself: of where I was and where I could go.

The practice of staying with it-to be shaped by grief and be moved by the presence of suffering-began to take me towards life, instead of away from it. I started to understand that suffering wasn’t opposed to life-it was a part of it. In fact, it was going towards suffering that I began to find myself: the self that could embrace everything, that could be whole.

As I went towards life, I became more aware of the suffering in others. Similar to that moment I had in the parking lot outside the hospital, I saw that this was something everyone around me would go through. Perhaps not the same exact circumstances, but some kind of suffering nonetheless. No one around me was untouched by it, no matter how much they might pretend otherwise. Through this awareness, I realized that I cared about others’ pain as much as my own-and that none of us needed to suffer by ourselves. I discovered how qualities of awareness, kindness, and compassion could carry my own suffering and found a desire to share that kindness and compassion with others. In this way, my suffering was no longer life-denying: it began to affirm, and to give.


Dawn

Fischer would have been 25 years old this year. I am still learning from my grief, and continue to journey with suffering as a teacher. I continue to grieve the hatred, anger, and lack of understanding that drove people to dehumanize him. I grieve the knowledge that I felt even while Fischer was alive: that despite all of the love and support he would receive from his loved ones, he would still have to grow up in a world that would struggle to accept him. I grieve knowing that he would have to fight every day for his basic humanity. I grieve for the suffering of transgender people everywhere, who face hatred and violence for asking to be seen.

Learning through suffering has transformed me. I am much different now than I was eight years ago, and have found a life that continues to grow in its purpose and relationship to wholeness. Still, I would give it all away in a heartbeat if it meant I could see Fischer again. There will always be a part of me that wants that, to be with him as I knew him.

When my grief is especially near, I think about one of the great gifts of Fischer’s life. Being young, his body was capable of donating parts of his skin, eyes, and muscle to an extraordinary number of people: over 100 of them. Many of these donations were life-changing, improving or adding to a quality of life that may have been unavailable or impossible otherwise.

When I’m in those moments of longing, when I feel I cannot bear living without him, I think of these people. I do not know their names, or what their lives are like. But I think of them holding their loved ones, or watching movies with their kids. I imagine them riding bikes, swimming, playing, living full and what I hope are happy lives. When I think of them, I see Fischer. Although his own life was tragically cut short, he has become a part of many lives, a part of the wonder of life itself.

I see Fischer when I laugh, when I’m celebrating something with friends, when I’m out hiking and scrambling across rocks in the way he used to. For me, he’s actually there in those moments: not gone, just different. He lives on through me, through the people who loved him, through the universe and reality itself.

The last words he ever said to me were: “I love you.” Over time, this has become a message that I strive to live by: for myself, for humanity, for the world. Fischer loved selflessly, and I can honor him best by trying to do the same. The suffering of others is my suffering, is our suffering. We do not need to experience it in the same way others do, but we can express our care and concern. We can do what we can to show up for them. They need us, and we need them. We need each other: completely, earnestly, without hesitation.

What we accept we are willing to embrace, and what we embrace we are willing to love. To love amidst suffering is to embrace wholeness. It is to participate in a life that enfolds everything, suffering included. This path may be difficult at times, but it is where we can find our hope, our transformation. We discover a deep love for the world, and through this love is freedom.

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Being Present to Suffering

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Encountering Suffering